Introducing some of our JMML Children...
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June 1998-August 2004
Jordan Anthony Grosclaude was born June 28, 1998 in Cedar Rapids, Iowa.
Jordan, diagnosed at the age of 33 months with a rare form of leukemia called Juvenile Myelomonocytic leukemia, or JMML.This leukemia affects about one percent of the childhood leukemia with a survival rate of 40 percent with a bone marrow or stem cell transplant.
Jordan was a typical boy who had immense love for his brother Mitchell, his dog Keisha, his cat Kona and his family and friends. Jordan loved to play in his sandbox, swing, catch lightening bugs, play video games, dance to the music Creed, and go to school when he was in remission. He loved to laugh and play jokes on his dad, brother and his nurses.
Jordan had a passion for CAT construction equipment and loved to collect as many of the replicas that he could. He identified CAT trucks by name, model number and was interested in their gear ratios.He learned about CAT trucks through real life videos and books.
Jordan touched hearts of many who knew him and was eager to comply with drugs experimental to JMML and was apart of a Phase II study of a new drug, now FDA approved called Clofarabine or Clolar.Jordan received Clofarabine at MD Anderson, in Houston Texas.After three rounds of this chemotherapy, Clofarabine put him into remission and this gave him another chance with life.Jordan now has a medical paper written on his behalf proving a refractory cancer such as his JMML could achieve remission by the use of Clofarabine.
Jordan's medical treatment consisted of a bone marrow transplant from his brother Mitchell, a stem cell transplant from his brother Mitchell, many doses of donor lymphocytes for prophylaxis, several treatments of a drug called IL2, an experimental drug called FTI, total body irradiation, radiation to his chin and lymph nodes and a 3rd bone marrow transplant from a unrelated donor.Jordan, again also proved that a third transplant could be an option for others.
The Angel Project touched Jordan in October of 2003 at the time of receiving the drug IL2.The angel was placed in his room for comfort, is now, and forever will be in a curio cabinet along with many CAT machines.
Jordan died August 18, 2004 from a relapse of cancer in his brain.
Susan, Jordan's mom,
Please visit Jordan's web page