The Mission of the JMML Foundation is to cure JMML and to improve the quality of life of JMML patients and families worldwide through research, education, advocacy, and charity.
Through our effective, efficient management of public funds, we will be the primary enabler for the research necessary to cure JMML and the primary international support resource for families of JMML patients.
OUR CODE OF ETHICAL CONDUCT
Am I doing the right thing?
Am I making the best possible use of the resources at my disposal?
Will my actions bring credit to The JMML Foundation?
Would I be willing to have my decisions made public?
We, the Board members, officers, staff, and volunteers of The JMML Foundation, will carry out the mission of this organization with the highest standards of ethical conduct and will conduct organizational and operational duties with positive leadership exemplified by open communication, creativity, dedication and compassion. We commit ourselves to the following principles:
- We are committed to acting honestly, in accordance with the letter and spirit of external laws and regulations, and internal policies governing this foundation.
- We will concern ourselves with professional competence, fairness, impartiality, efficiency, and effectiveness.
- We will vote according to our personal convictions, yet are willing to support the decisions of the Board of Directors.
- We will avoid any interest or activity that is in conflict with our official duties, will refrain from actions and involvement that may prove embarrassing to the foundation and agree to resign if such actions or involvement develop.
- We, as individual board members, agree not to speak on behalf of the JMML foundation without the sanction of the Board of Directors.
- We will hold paramount the safety, health and welfare of the public in the performance of professional duties.
- We will carefully prepare for, regularly attend, and actively participate in board and committee meetings and assignments as well as other activities of the Foundation.
- We will accept as a personal duty the responsibility to keep up-to-date on emerging issues.
- We will serve the public and each other with respect, concern, courtesy, and responsiveness in carrying out the organization’s mission.
- We will listen to the ideas of others.
- We will respect and protect privileged information to which we have access in the course of our official duties.
- We will be committed to ensuring that avenues for communication are accessible to all.
- We will share information openly and honestly, consistent with our privacy and confidentiality obligations.
- We will promote and seek out diversity and inclusiveness in the makeup of our Board, staff, and volunteer base, both to reflect the communities they serve, and to ensure that the range of perspectives, opinions, and experiences is recognized and acted upon to enhance our ability to contribute to the common good.
- We will treat with respect and consideration all persons, regardless of race, religion, gender, sexual orientation, marital or family status, disability, maternity, age, or national origin.
- Our members will manage their resources to ensure that they are dedicated to philanthropic purposes rather than private gain and actively seek to avoid excessive compensation and unreasonable or unnecessary expenses.
- We will seek to create the maximum public benefit both through our work and the work of partners, colleagues, and grantees.
- We will dispense funds for research grant awards through a peer review process to promote the best quality of research in the field as judged by peer physicians and scientists.
- We will prioritize direct assistance grants by urgency of need, without regard to personal ties or affiliation with this foundation.